Please join our support groups to connect with families and medical experts. 

Resource Guides

We provide free copies of Living with Leukodystrophy (a medical resource guide), Loie's Disease (a children's book explaining leukodystrophy for educators, parents, and children), and Fixing Genes, Treating Disease (a children's book explaining gene therapy) to MLD families.  

Care Packages

We provide care packages for newly diagnosed families and families facing extended hospitalizations. 

Travel Grants

We provide travel grants for families seeking treatment in the US and abroad. ($500 for local travel and $1000 per affected child for international travel).

Online Webinars

We host online webinars with leading clinicians and researchers. In December, we will launch a webinar series with Margaret Stanvcavage, RN on how to manage care in "the home hospital" as part of our "Caring for the Caregiver" series.  

Support & Guidance

We provide support and guidance for families dealing with Medicaid and IEPs.


We want to help you become a champion for your MLD loved one and inspire you to become an advocate for improved care, newborn screening, awareness and research.

Emergency Grants

We provide emergency grants for families in need. Grants are provided on a one-time basis and range from $500 or more based on the documented need.  Such funds may not be used for home renovation projects.


We provide advice and guidance for families participating in clinical trials and help facilitate access to medical experts.  

Training Sessions

We will host training sessions on successful fundraising strategies for your family and or the MLD community at large.  

Need help? Please ask
Contact Us

PO Box 2866

Bala Cynwyd PA

19004 USA

We are grateful for the support of our friends and partners:

Support for Cure MLD comes from an unrestricted grant from Orchard Therapeutics. 

© 2019 by Cure MLD | Proudly created by CAZ Media Design

  • Black Facebook Icon
  • Black Instagram Icon
  • Youtube