Mothering Cal

Gene Therapy Trial Wrenches Families as One Child’s Death Saves Another

I can’t save my daughter from a terminal illness. But we can help save other children from the same

How much would you pay for the miracle of gene therapy?

Five times an Illinois health insurer rejected out-of-state treatment for a 4-year-old

7 Patients Who Are Leading the Charge Against Their Rare Disease

Medicaid covers sick or dying children. But it takes ‘going to battle’ to get it

MLD father Les Martin's inspiring work for newborn screening.

Read Cure MLD co-founder's oped for STAT

Chicago Tribune chronicles MLD mom's fight for Medicaid approval. Read the story.

Why did we start Cure MLD?

A new decade brings new hope

Mothering Cal - What I learned from parenting a terminally ill child.

The Philadelphia Family Helping to Drive Research on MLD

To really help a family in crisis, here are a few good rules to follow